Anne Cooke and Dave Harper
Is your mind made up about mental illness? This picture may dispel any doubts. Photo: Giovanni Cassanese |
It’s a sobering thought that, for many people who use mental
health services, other people’s reactions cause more distress than their
original problems. And attitudes may
even be getting worse. A recent report from
the Department
of Health found that whereas in 1997, 92% of people
questioned agreed that ‘we need to adopt a more tolerant attitude
towards people with mental illness’, in
2011 only 86% thought that we need to be more tolerant. Worryingly, young people appeared to be the most
prejudiced.
Relatively
static attitudes to mental health stand in contrast to the changes there have
been in attitudes about ethnicity and sexuality (we currently have a
conservative Prime Minister advocating same-sex marriage). It’s even more surprising given the effort
that has gone into anti-stigma campaigns. For example you may have seen the recent tube
posters or TV ads from the government sponsored Time to Change campaign. So what’s the problem? Perhaps part of the answer is what campaign ads
actually say. Or what they don’t.
Traditionally, public education campaigns
about mental health have aimed to reduce stigma. The assumption is that stigma is caused by
people not recognising that mental health problems are ‘illnesses like any other’.
For Time
to Change, as our colleague John McGowan recently noted, they are ‘as real as a broken arm’.
A key assumption here is that unless
distress is seen as part of an illness, people will blame sufferers for their own
problems. Much better then to be genuinely sick.
We’re not sure about these underlying assumptions. Firstly, the very idea of stigma is
problematic in that it individualises and medicalises what may be an issue of
prejudice. We don’t talk about the
stigma of being a woman, or of being black; we talk, quite rightly, about
sexism and racism.
What about the idea that discriminatory
attitudes are based on ignorance? Many anti-stigma
campaigns have aimed to increase so-called ‘mental
health literacy’– i.e. education about different mental illnesses. Notable examples of this approach have included
Every Family in the Land and Defeat Depression, both led by the Royal College of Psychiatrists. Considerable amounts of money have been invested
into such campaigns. However, even their advocates have been forced to admit that there has
been little effect. If anything, things have
got worse. We think that the reason for
this lies in the third assumption. Reviewing the evidence, John Read and colleagues found
that viewing emotional distress as ‘an illness like any other’ actually increases prejudice and discrimination. For example, in one study based on Stanley Milgram’s famous
electric shock obedience experiments, participants who were told that someone had
a mental illness opted to give them more electric shocks than if the person’s
problems were described in more everyday language*. The study’s authors suggest that presenting
problems as an ‘illness’ has the effect of making them seem mysterious and
unpredictable, the people experiencing the problems as ‘almost another
species’.
So if the traditional approach isn’t working, what’s the
alternative? In recent years two related
approaches have gained ground. The first
draws on an idea from the wider disability movement, namely the ‘social model’
of disability. This proposes that, rather than the problem for people with
physical disabilities being the actual impairment, most difficulties lie in the
way society organises itself. The classic example is putting stairs everywhere. While this model has its limits, these kinds
of ideas were influential in the 1995 Disability Discrimination Act, and led to
widespread changes, at least in our buildings.
Within the mental health field commentators like Liz Sayce
have been influential in applying this model.
Mad Pride
is a colourful example of an approach that says it’s Society’s role to change. This is not simply a romantic notion that we
can wish distress away by challenging discrimination. While some people experiencing unusual and
exceptional experiences want to be liberated, others may find the experiences
distressing and seek some form of help. What
both groups agree on is that discrimination is a major problem.
The
second approach is what you might call the psychosocial one. There is increasing evidence that even the
most severe mental health problems are not the result simply of faulty genes or
brain chemicals. They may also be a natural and
normal response to the terrible things that can happen
to us. As our colleagues John Read and Nick Haslam have
put it ‘bad things
happen and can drive your crazy’. To many people this is
just common sense. Unlike the illness approach, it makes
people’s experiences seem more understandable,
enabling people to empathise more.
So we have at least two alternatives to
the ‘illness like any other’ approach: a
focus on ending societal discrimination against people with mental health
problems; and viewing distress as a response to negative life experiences. Although Time
to Change does not promote a medicalised approach we think it has missed an
opportunity to challenge not only our attitudes but something much more
fundamental: whether there are people who are ‘normal’ and people who are
‘mentally ill’ , or whether we’re all in this together.
*For those unfamiliar with Milgram’s experiment the ‘shocks’ were fake.
Those asked to administer them were not made aware of this until after the
experiment had concluded.
Anne Cooke is a Principal Lecturer, Department of Applied
Psychology, Canterbury Christ Church University
Dave Harper is a Reader in Clinical Psychology, University of East
London
I've always wondered about TTC (and about that photo!) Interesting that the research suggests that campaigns like this may not be effective.
ReplyDeleteI have suffered stigma and feel that TTC is ineffective as the popular press/media is always a stronger. Stereotypes of crazed characters out of horror films all add to the Social Construction of an average service user. Also people like Stephen Fry have sanitized/normalized real distress and oppression.
ReplyDeleteI too suffer stigma and the medical profession are also very prejudiced and not in the least bit honest.
ReplyDeleteIt's interesting to note that people who have used mental health services and engaged with the Time to Change Campaign have had negative experiences of doing so. Our organisation was approached in relation to evaluating the impact of our involvement in the Media arm of the campaign when we used participatory video production to make films which documented the experiences of our members.
ReplyDeleteWe fed back to them that a purely quantitative approach in language that was of a high order and did not reflect the cultural or lived experience of our members would not do and that what was needed was a mixed methodology with qualitative input. We didn't even receive a response to our comments from the Institute of Psychiatry who had been commissioned to undertake the evaluation. We contributed to a number of publications in Mental Health Today recently which explain a number of complaints and criticisms shared by people from under represented groups and communities.
I believe that moving forward is a really difficult challenge and the attempt to reduce stigma and discrimination which the TTC campaign represents does have some positive features which critics often gloss over.
ReplyDeleteOf course, the individualisation and medicalisation of distress is a serious matter, so what perhaps we could say is that within the state/civil society complex one could pour our entire GDP into the task of altering attitudes towards mental health and it would make no tangible difference.
Therefore, in my view, trying to raise awareness, commence awkward conversations and spearhead the direct message that something has to alter are positive although necessarily limited aims. Jumping on the bandwagon for the purposes of derailing it is in nobody's interests. Critics who engage with the campaign only to point out it's limitations may aswell join the stigmatisers and discriminators openly, in my humble opinion. Mum's the word when a well-meaning friend is trying to help.
I do like your discussion of two alternative models. I mean no offence to your efforts and personally see the ever-growing issues which present themselves as being to do with a 'distinct' area we refer to as mental health as representing a major prescient challenge to the current political economic orthodoxies of our time.
"mental illness" versus "more everyday language". Thanks to mental health awareness campaigns such as TTC, "mental illness" has become part of everyday language. I'd wager that were some-one to survey the general public about their perceived levels of mental health literacy, quite a lot of people would think they know quite a bit about mental health and illness. For example most people know, for a fact, that spurious "one in four" statistic.
ReplyDeleteYoung people feel particularly informed as they are the target, at least here in Ireland, of the bulk of the campaigns. I can't for the life of me understand why we are so keen to educate teenagers about something on which there is so little scientific, or other, consensus and why we persist in relaying "facts" that are increasingly being discovered to be misconceptions.
http://stepstowardsthemountain.blogspot.ie/2014/04/we-need-to-talk-about-mental-health.html